I’m exhausted. In a good way. But still. Like the kind of tired that only people that have been there really can understand, where words come out slurry and walking looks more like a stumble.
I worked today. But it was fantastic!
Some of my students are making a music video where they are singing and dancing and being kids.
It has been the best thing I’ve done all year in my tech classes.
It’s totally extra-curricular. Not for a grade. Not part of a project. I had kids that I don’t even teach coming in and volunteering to be part of the group. Amazing!
I am happy beyond words! Music is such a powerful thing. It motivates, empowers, and draws in kids that would normally never volunteer.
It’s a great way to end the week and go into Spring Break!
I stumbled upon this lecture on youtube. It’s wonderful. I actually felt like he was talking about me. He talks about heat sensitivity, fatigue, internuclear ophthalmoplegia (also called INO….it’s one of the symptoms I have). It was great actually learning about INO and why my vision is the way it is. He also says that people with INO are the people to study (referring to heat sensitivity, I believe) because they can provide recordable data for drug companies trying to get drugs approved by FDA.
He talks about 4AP (aminopyridine) and the benefits of it, and why it’s only available for walking, but should be available for pretty much everything.
He also goes over a study of a medical student that has MS and that person is almost identical to my case. I learned so much from this lecture. I feel like I have found missing puzzle pieces to my puzzle.
I have both hot and cold intolerance. This winter has been awful!